Wednesday, 23 November 2011
Eleanor had her implantation surgery on 18th October so 5 weeks ago.
We've been busy head protecting and learning to live with no sound since.
Today is our 1st monumental step forwards - Switch on 1.
I'm not sure to expect it could be the most amazing moment ever it could also be the biggest anti climax I've ever witnessed.
However we keep solidering on but no longer fighting the system now we are in to rehab and lets see what happens!
Monday, 23 May 2011
Three bloggers are visiting Mozambique and following a box of vaccines from arriving in the country to reaching their destined children. And lots of other bloggers are raising awareness by asking their children to draw a picture of what they’d like to be when they grow up.
Eleanor's picture is of Upsy Daisy. As she's deaf it was hard to explain to her that I wanted her to draw a picture of herself. I showed her a picture of herself but she just went and got an ITNG comic and started to copy Upsy Daisy. Now I don't know if that's how she sees herself now or in the future you can draw you're own conclusions but her art has come on so much recently that this is only the second time she's drawn something which shares a bit of resemblence for the object she's copying. This is a massive developmental step forwards for us.
Linda aka stripyzebra tagged me in this meme and I’m now asking some mummy blogger friends to Pass It On and raise awareness of this petition.
The rules are:
1) Get your child to either draw or craft a self portrait of themselves now or in the future, perhaps imagining what they will look like or what they might do. Check out Red Ted Art (who is now running a blog hop) post on self portrait to get started!
2) Sign the Save the Children petition and share news of it with your friends.
3) Write a blog post about it as soon as possible, featuring your children’s pictures and perhaps how you made them together, and including info about Save the Children and the petition. We want as many people linked up AND signed up the petition by Sunday 29th May 2011
4) Tag 8 blogging friends to do the same – #passiton! If you want to join in and I’ve not tagged you, please do!
5) Come back and link up your posts, either at Sleep is for the Weak or over at Red Ted Art, so we can all see each other’s posts and if you have time, go and leave some comment love on each others posts! It’s a blog-hop link-up so you can even publish the list of entries on your blog (like I have below).
My eight lovely bloggers:
1. It's all about the photos
2. Booby and the beads
3. Muddling along mummy
4. Clare's Diary
okay 4 are to follow but I'm working on finding more bloggers!
Wednesday, 11 May 2011
Since I last wrote we've been to the Yorkshire Cochlear Implant Centre 3 times. We've now had 2 hearing tests and a consultation with the consultant.
we are no nearer to a decision as Eleanor isn't interested in doing more hearing tests but the clock yes the NHS timeline clock is ticking and hopefully soon she will allow them to have all the data that they need and then we'll move on to decision time.
We're awaiting a date for a CT or MRI scan depending on which they decide to go with and we're going for another hearing test in June.
So we continue on our mission and will get to a decision at some point soon I hope.
In the meantime we continue to practice how to do a hearing test and hope that she gets the hang of it soon.
Next week is all change for me as I'm going back to work on Monday!
Tuesday, 19 April 2011
Here she is with her headline that made me stop the car and dash in to buy one so we were late for nursery oooooppppsss
LInks to the best articles for you
york press http://www.yorkpress.co.uk/news/8921623.Two_courageous_young_girls_show_they_are_little_fighters/
Yorkshire Post http://www.yorkshirepost.co.uk/lifestyle/health-and-family/health_little_fighter_eleanor_s_tough_start_1_3210994
Eleanor won a childrens Champion Award from Tommy's the baby charity. She was nominated by a friend of ours because of everything she has over come since she was born. She received her award from Lee Mead and we're immensly proud of her and everything she's achieved todate.
She was a bit of a local press sensation too more will follow on that.
read more about it here
I'm going to do a few catch up posts to get you all up to date.
Monday, 21 February 2011
Today was our cake a difference tea party.
Oh and boy did we cake a difference. I have never ever seen so much cake in my house. I have so many talented friends who bake such amazing cake and my neighbours boy can then cook too! I've moved to a great street!
Eleanor loved it sampled a lot of cake and Lucy couldn't believe her eyes to see all these people passing through our house and enjoying cake. She did eventually get some with her tea.
We have so far raised £326.50 between online just giving donations and money I collected today. Not bad for a bit of baking for one of our favourite charities. Bliss.
Thank you so much everyone to help Bliss to continue supporting families like us. It means a hell of a lot to us.