21st March 2011 Get me and my headline!

21st March 2011 Get me and my headline!, originally uploaded by sparklingbizzy.

Eleanor was on the front page of the York Press, Selby Post and in the Yorkshire Post, Evening News and Selby times after her award winning moment.

Here she is with her headline that made me stop the car and dash in to buy one so we were late for nursery oooooppppsss

LInks to the best articles for you
york press http://www.yorkpress.co.uk/news/8921623.Two_courageous_young_girls_show_they_are_little_fighters/


Yorkshire Post http://www.yorkshirepost.co.uk/lifestyle/health-and-family/health_little_fighter_eleanor_s_tough_start_1_3210994

18th March 2011 - Tommy's Lets Get Baby Friendly Awards

we're at the Langham get us in our posh frocks!, originally uploaded by sparklingbizzy.

Eleanor won a childrens Champion Award from Tommy's the baby charity. She was nominated by a friend of ours because of everything she has over come since she was born. She received her award from Lee Mead and we're immensly proud of her and everything she's achieved todate.

She was a bit of a local press sensation too more will follow on that.

read more about it here

http://www.tommys.org/Page.aspx?pid=803

19th April 2011 It's been a while here's an update

Between my last post and now we've finally had progress.

I'm going to do a few catch up posts to get you all up to date.

21st February 2011 - Cake a Difference Tea Party

21st February 2011 - Cake a Difference Tea Party, originally uploaded by sparklingbizzy.

Today was our cake a difference tea party.

Oh and boy did we cake a difference. I have never ever seen so much cake in my house. I have so many talented friends who bake such amazing cake and my neighbours boy can then cook too! I've moved to a great street!

Eleanor loved it sampled a lot of cake and Lucy couldn't believe her eyes to see all these people passing through our house and enjoying cake. She did eventually get some with her tea.

We have so far raised £326.50 between online just giving donations and money I collected today. Not bad for a bit of baking for one of our favourite charities. Bliss.

www.bliss.org.uk

Thank you so much everyone to help Bliss to continue supporting families like us. It means a hell of a lot to us.

www.cakeadifference.org

www.justgiving.com/eleanorscakeday

Things to do in half term

I'm dreading next week what am I going to do with 2 small children all day every day for a whole week.
Monday we're caking the difference but then there's tuesday, wednesdsay, thursday and friday to fill.
our usual groups don't run in half term.

Next week could be the end of me.
Ideas on a postcard please I don't want to do anything that encourages more drawing on the walls btw!

16th February 2011 All about Eleanor Hearing Update

16th February 2011 All about Eleanor, originally uploaded by sparklingbizzy.

We've had the results of the genetic testing no surprises there are no genetic reasons for her deafness. The cause remains as we suspected prematurity and some of the antibiotics she was given whilst in hospital. Gentamicin has a lot to answer for. We don't regret her having the drug because if she hadn't she wouldn't be here but still we're left with a less than ideal situation.

Still waiting for our referal letter.

It's also still cake a difference week for Bliss (www.cakeadifference.org) so there'll be more Eleanor and cake to come over the next few days.

Go ahead Bake my day

Cake the Difference Week 14th to 20th February 2011, originally uploaded by sparklingbizzy.

The text in the photo says it all here it is again

Cake the Difference Week 14th to 20th February 2011

Imagine if you were unable to touch or kiss your newborn baby. This is an ordeal thousands of families, whose child arrives too soon, too small or too sick, are forced to go through each year. But you can help. By baking and selling cupcakes, you’ll be raising funds to help support families during what can be a very lonely and frightening time, and to provide a brighter future for their babies.

Eleanor pictured behind the cake was 12 weeks premature. She weighed 1lb 4oz at birth and had an exceptionally rocky 5 month road to home. Bliss provided us as a family invaluable support. They still do today over 3 years later. With the very premature, sick babies the consequences live with you day in day out. Eleanor is deaf the cause of her deafness is her prematurity. She's small another characteristic of her prematurity, she has a weak chest and is very vulnerable to chest infections, viruses etc and frequently requires hospital stays. All of this because she was premature. We have come a long way in the last 3 years and I can honestly say without the support of Bliss I might not have got the care I needed to be able to carry Lucy to term. They got me into a fantastic network of people. I'm pleased that I can repay the favour by supporting this cause and providing parent views on neonatal issues.


Some facts and figures:

• There is a shortage of 1,150 nurses to care for the 70,000 babies in need of specialist hospital care in England. Less than a third of units have enough nurses to meet minimum standards.
• Neonatal units are working way above recommended occupancy levels meaning there is no safety net for peaks in the number of babies being admitted to units.
• Families of babies admitted to specialist hospital care face a crippling financial strain on top of the normal costs of having a new baby.
• Over half of parents face the prospect of not being able to stay near their baby in hospital due to a shortage of overnight rooms for families.

Cake A Difference is the annual fundraising initiative from Bliss, the special care baby charity. Bliss offers guidance and information at a critical time in families' lives, funds ground-breaking research and campaigns for babies to receive the best possible level of care regardless of when and where they are born. Cake A Difference 2011 takes place from 14-20 February 2011. For more ideas on how you can support Bliss contact katiaw@bliss.org.uk

we're baking a difference on Monday 21st February 2011 so if you're local to me please come and join us the details are on the cake a difference map!

finally if you want to help make a difference my just giving page is

www.justgiving.com/eleanorscakeday

Go ahead, bake my day!